SWAN (Syndromes Without A Name) UK is a charity for parents & carers who have children who are undiagnosed or have no primary diagnosis, like Brody.
6000 children are born each year without a diagnosis for their disabilities. No diagnosis can be isolating for families and you can feel like you’re living a life in limbo.
If your child is undiagnosed, you can visit the SWAN UK website and complete an application form to join their community. There is a supportive Facebook group and parent reps throughout the UK who arrange days out.
You can also view other bloggers on their website here.
Check them out.
You’re not alone. x