SWAN (Syndromes Without A Name) UK is a charity for parents & carers who have children who are undiagnosed or have no primary diagnosis, like Brody.

6000 children are born each year without a diagnosis for their disabilities. No diagnosis can be isolating for families and you can feel like you’re living a life in limbo.

If your child is undiagnosed, you can visit the SWAN UK website and complete an application form to join their community. There is a supportive Facebook group and parent reps throughout the UK who arrange days out.

You can also view other bloggers on their website here.

Check them out.

You’re not alone. x

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