Every so often, something will happen to highlight how delayed Brody is either cognitively or physically. And every so often it catches my breath or punches my gut. But the dreams I once had at…

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Friday, 29th April 2016 is Undiagnosed Day. Syndromes Without A Name (SWAN) UK are a charity that offers support and advice to families with children who have undiagnosed genetic conditions…   Until we had Brody,…

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A Mother’s guilt is something else isn’t it?   Ever since both of my children took their first breath, it’s been there. Staring me in the face when one of them fell down some stairs…

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I’ve been thinking of writing a blog about life with Brody for a long time. So much so, he is 4 next week and when I logged in to Word Press (I wasn’t aware I…

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