Brody is 5 years old and a happy-go-lucky, beautiful boy.
He has no primary diagnosis for his disabilities, despite lots of genetic testing, which means he has a syndrome without a name. He has Global Development Delay, Epilepsy, Autism, Hypotonia and Hypermobility Syndrome. He cannot talk at all, but uses a little bit of makaton.
Fortunately, Brody can walk, although he has a wheelchair for some outings as his legs tire easily and he frequently falls over. He has an AFO splint because he has a cavus foot and one leg is mysteriously losing muscle, which is under investigation.
When he’s not having a whinge (let’s face it, most kids like one!), he is a joy to be around. He loves a laugh and is truly scrumptious. Despite all of his difficulties, he just gets on with it. He’s an inspiration and a very much loved little boy, who we are very proud of.